Barb, Don & Ray

Read the Story – See the Pictures

About Us

I'm Barb Ballard and my husband is Don. Our son is Ray and he has XSCID.

Ray’s story has lots of ups and downs. I hope to keep this more updated so people can see what he’s accomplished and how far he’s come.

We live in Virginia.

It's not all about SCID though. This blog is also about various day to day activities, places we visit, and the things in which we are involved.

For 2010 I've been trying something new which I've called "Picture A Day". It's a bit of a personal challenge. I'm trying to post a picture every day. A few will be memories from the photo archives. Some will be pictures taken that very day. I hope you enjoy them. It's fun deciding which ones I want to post. You can view a larger version of each picture by clicking on it.

If you like something please post a comment. It's nice to see who has dropped by!
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Categories

Awareness Blogging Cued Speech Free Time Geekiness Hearing History Lions Mobile Nature Picture A Day PIDD Racing Recipes Rifle Team Roadside Attractions SCID Initiative Sports T-Shirts The Dog Thoughts Through the lens Travel Tweets You Capture
Cued Speech
Newborn Screening
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Comments
1. “Rapunzel, Rapunzel, let down your hair!! MBM ”
  Mary Beth on 08/10/10
2. “Barbara, I'm glad you like them! It's made me do more thinking about when and where to take pictures ...”
  barb on 08/11/10
3. “Barb: Thanks so much for the daily pictures. I so enjoy them and they are thought provoking sometimes which is good. ...”
  Barbara Stevenson on 08/11/10
4. “It has been too hot to play outside. We live in NC. I am ready for some cooler weather. Have ...”
  Sarah Halstead on 07/29/10
5. “ooo, great shot! I love the composition and the angle you took it from. It's definitely different from ...”
  Jen C. on 07/22/10
What I said on Twitter
- Nobody better touch my Butterfinger! Check out this cool video if you're a Butterfinger lover. http://lx.im/699B 4 days ago
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Twitter Weekly Updates for 2010-08-29

Filed under (Tweets) by barb @ August 29, 2010

RT @WeCue: New blog post: Guest Bloggers http://bit.ly/c5eInE #
RT @HJKforever: RT @lysssie Why do I get in trouble for speaking the truth ..nobody gets me. The truth hurts! But it brings freedom!!! #
RT @Disabilitygov: Kids As Self Advocates' fact sheet: What Is a Center for Independent Living? http://bit.ly/bWqgu3 #
home project going on http://yfrog.com/jn2ytmj #
Good article about infant immunity http://bit.ly/9rO5nN Immature immune system and risk of infection in newborn infants #
finished project http://yfrog.com/ne4ikqj #
RT @TheCoffeeKlatch Twitlonger: We are thrilled to have Carol Kranowitz author of "The Out of Sync .. http://tl.gd/32o4jh #
RT @JoannaTierno: Blood Drive Sunday 8/22 St. Mary's 1128 Olympia BLVD. 10AM-4PM , Still time to show up 347-934-0024. #
RT @AccessDNA: The Clinicians Approach to Genetic Testing 4 Autistic Children: Human Genome and Clinical Diagnosis: The Yin and the Yang… #
Hope Week gives SCID survivor Daniel Fratto a chance to announce Derek Jeter entrance 4 Yankees game: http://bit.ly/csHnCY #
Government will appeal injunction against stem cell funding – http://bit.ly/9hXSlC #cnn #
RT @BabysFirstTest: IDF SCID Newborn Screening: Delaware ACTION! http://ow.ly/2vQRU #

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08/23/10

Filed under (Picture A Day, Roadside Attractions, Through the lens) by barb @ August 23, 2010

Motion

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08/22/10

Filed under (Picture A Day, Roadside Attractions, Through the lens) by barb @ August 22, 2010

Oh look, there’s Ray at the top of the Ferris wheel.

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Twitter Weekly Updates for 2010-08-22

Filed under (Tweets) by barb @

Rain started just as I stepped out with the dog. Oh well. #
RT @LaundryDayBlues: Tomorrow my son turns 4. He's turned my world upside down but I'm so very thankful. – ((smiles and hugs)) for both of u #
Anyone use Yelp? I used to rate things all the time, but I've found out that about 1/2 my reviews aren't showing up. #fail #
RT @CDCuthbert: Newborn Screening Saves Lives. Good job!! http://t.co/uRYs2pk #SCID #newbornscreening #
sponsored: Diaper rash? Summer rash? Heat rash? Clear it with Butt Paste! http://spn.tw/ttjBD #
sponsored: Special needs require special transportation methods, find out more with a qualified NMEDA dealter http://spn.tw/ttkPL #
California to implement #SCID #newbornscreening http://bit.ly/blNIpR #
RT @tweetautism: Purchase photographic #art by adults with #autism and keep the program going.. click here: http://bit.ly/arM2Uf #
.@BryanHoch Tell Daniel Fratto hello! Go Daniel, Go Daniel, Go Daniel!!!! #
RT @IDFCommunity: CA is set to begin newborn screening for #SCID Check out the IDF blog to learn more! http://bit.ly/aZff10 #
RT @KPCharityRide: AMAZing article about the maze. Buy a pumpkin and support Victory Junction! Thanks Marty…. http://bit.ly/b5y8p6 #
RT @APHLNews: Two confirmed case of West Nile Virus in Maryland http://bit.ly/9vQg6X #
audiology appt http://twitpic.com/2gir2w #
URGENT Nationwide Egg Recall. Are you at risk? http://bit.ly/caaX1w #
Have you added the SCID Newborn Screening Twibbon to your profile picture? Add it now to show your support! http://bit.ly/95ZGgB #
RT @deafsupport: Study: NASCAR Poses Major Hearing Loss Risk http://bit.ly/bq82v1 #
Vitamin B12 Deficiency: Causes, Symptoms, and Treatments http://bit.ly/by6SVM #
Anyone use ioffer.com? opinions? #

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08/21/10

Filed under (Picture A Day, Roadside Attractions, Through the lens) by barb @ August 21, 2010

More from Knoebels, from the top of the ferris wheel.

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08/20/10

Filed under (Picture A Day, Roadside Attractions, Through the lens) by barb @ August 20, 2010

Well, as if the County Fair wasn’t enough, next we headed for Knoebels Amusement Park in Elysburg, PA. They have a really wicked wooden roller coaster called the Twister. I rode it… once.

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